BACKGROUND: Lymphedema (LE), a chronic condition is an abnormal accumulation of protein-rich fluid in the interstitium, which leads to limb swelling. Secondary or cancer related LE can result from damage to the lymphatic circulation following surgery, chemotherapy and/or radiation. During the last three decades the lymphatic system and appropriate treatment has come to the forefront of medicine and “Complete decongestive Therapy” (CDT) has become standard of care.
METHODS: In early 1990 a handful of clinicians came to the realization of the ignorance of LE and appropriate treatment and with support of the National Lymphedema Network (NLN) Complete decongestive Therapy was introduced, and the first Training course for therapists was established. Since that time clinical experts, researchers, educators, patient advocates and industry representatives have worked tireless hours in creating awareness, risk reduction, education, support, and research in lymphedema management. Protocols for early detection of LE in cancer patients are in place. Randomized studies in clinical, diagnostic and genetic research are ongoing and surgery in selected patients is promising. Patients and patient advocates have and continue to play a major role in educating local and federal representatives to support appropriate treatment and reimbursement.
CONCLUSION: Appropriate treatment for LE is in place. Thousands of therapists are certified; pre and post-operative protocols in cancer centers are in place, patients are educated in risk reduction ongoing research is seen at Academic institutions, and most important patients are receiving safe and appropriate treatment and enjoying day to day living.