BACKGROUND: Lymphedema acquired after cancer surgery is a disfiguring condition and the incidence varies widely in patients following axillary, inguinal and cervical dissection and/or radiation. Not until the last 3 decades that the lymphatic system has come to the forefront in medicine, and patients are now receiving appropriate treatment.
METHODS: As a result of the ignorance of lymphedema and lymphatic system disorders the National Lymphedema Network a non-profit organization was established in 1988 with its mission to increase awareness , education, support and expand the knowledge of this disabling condition, not only to patients, but clinicians, researchers and the general public alike.
RESULTS: Today lymphedema is identified as a legitimate disease in the US, and the current standard of treatment “Complete Decongestive Therapy”(CDT) is in place at University based clinics, hospitals, rehab centers: thousands of clinicians have become certified lymphedema therapists: physicians have included the lymphatic system in their existing practice; research is in progress at Academic Institutions; and patients are actively advocating for their rights and convincing their state and federal representatives to get laws in place to support proper treatment and reimbursement.
CONCLUSIONS: Through determination and collaborative efforts of dedicated clinicians, researchers, patient advocates, patients at risk or living with lymphedema are now diagnosed early and receiving appropriate treatment when needed.